Caring for someone with Parkinson’s requires patience, an understanding of Parkinson’s symptoms, recognition of the importance of medication timing and the ability to provide support on an ongoing basis. The videos on these pages provide education on how to best care for someone with advanced-stage Parkinson’s. The information may be helpful to family caregivers or professional caregivers who work with someone with Parkinson’s in the home environment.
As Parkinson’s advances, there is a shift in overall daily caregiving responsibilities. You will face many challenges, but you can ensure best care with thoughtful planning and knowledge.
Even if you have lived in your home for a long time, it may be hard for your loved one to stay safe because of changes in movement, balance, vision or thinking. Changes may be necessary for both present and future needs.
When you care for someone with advanced Parkinson’s, you must live life one day at a time, but being organized and planning for many potential outcomes will decrease future stress.
As Parkinson’s advances, movement becomes increasingly difficult. You will likely need to provide greater hands-on assistance and learn safe and effective ways to provide help without injuring yourself or your loved one.
Advancing Parkinson’s can make daily tasks more difficult to perform. Making some modifications to clothing and the dressing routine can help to improve safety and reduce frustration.
Your loved one may need your help to get his or her needed nutrition. There are ways to make mealtime safer, less stressful and more enjoyable while helping your loved one maintain independence in eating.
Bowel and bladder function can be impacted by Parkinson’s, and a significant number of falls with injury at home occur in the bathroom. Attention to environment and routine can help lessen problems.
It is important to acknowledge and adapt to thinking and memory changes even though they can be frustrating and frightening for both the person with Parkinson’s and the family.
On time, every time is a crucial concept in Parkinson’s medication management. Keep pills organized, set reminders for when they should be taken, and make sure that medicines prescribed for other reasons do not interact with the Parkinson’s drugs.
Advanced PD symptoms may decrease your loved one’s ability to participate in leisure activities. It is important to encourage physical, mental and social activity to maximize mobility and quality of life.
Leaving the home can be a cumbersome process with advanced-stage Parkinson’s. Know all the details before setting out, and make sure your home and destinations are accessible.
Parkinson’s creates many challenges to getting a good night’s sleep, both for the person with PD and the caregiver, but getting enough rest is an important part of overall health and quality of life.